The non-profit
organization
for promotion
of health and cure
of
OPMD

The non-profit
organization
for promotion
of health and cure
of OPMD

Oculo-pharyngeal Muscular Dystrophy (OPMD) is a rare hereditary disease that is more prevalent among Bukharian Jews and among French Canadians.

The common manifestations of the disease is difficulty swallowing and drooping of upper eyelids that may adversely affect the quality of life.

OPMD Project is a volunteer organization, dedicated to helping the affected people by facilitating access to early diagnosis and multidisciplinary care with guidance, counseling and promotion of research projects in collaboration with research teams around the globe to advance the cure of this disease.

Contrary to a popular belief about the lack of treatment for inherited genetic diseases, patients with OPMD can be treated for prevention of complications of the disease. Also, very soon we expect a successful development of drugs that could cure the muscles affected by this disease.
If you would like to receive updates on innovations in the disease – please apply to receive our newsletters by sending your name and email address at the bottom of this screen.
If you suspect swallowing difficulties you should perform a self-test questionnaire for swallowing disorders here.
If one of your parents or one of your siblings has been diagnosed with OPMD – you should check with a multidisciplinary clinic that specializes in this disease.
If you have been diagnosed with OPMD and you feel lost – you should contact us for guidance, advice and help – please click here.
If you belong to a population at risk for OPMD, such as Bukharian Jews – please join us here to increase an awareness of the disease and its treatment options.

Oculo-pharyngeal Muscular Dystrophy (OPMD) is a rare hereditary disease that is more prevalent among Bukharian Jews and among French Canadians.

The common manifestations of the disease is difficulty swallowing and drooping of upper eyelids that may adversely affect the quality of life.

OPMD Project is a volunteer organization, dedicated to helping the affected people by facilitating access to early diagnosis and multidisciplinary care with guidance, counseling and promotion of research projects in collaboration with research teams around the globe to advance the cure of this disease.

Contrary to a popular belief about the lack of treatment for inherited genetic diseases, patients with OPMD can be treated for prevention of complications of the disease. Also, very soon we expect a successful development of drugs that could cure the muscles affected by this disease.

If you would like to receive updates on innovations in the disease – please apply to receive our newsletters by sending your name and email address at the bottom of this screen.

If you suspect swallowing difficulties you should perform a self-test questionnaire for swallowing disorders here.

If one of your parents or one of your siblings has been diagnosed with OPMD – you should check with a multidisciplinary clinic that specializes in this disease.

If you have been diagnosed with OPMD and you feel lost – you should contact us for guidance, advice and help – please click here.

If you belong to a population at risk for OPMD, such as Bukharian Jews – please join us here to increase an awareness of the disease and its treatment options.

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