The non-profit
organization
for promotion
of health and cure
of
OPMD
The non-profit
organization
for promotion
of health and cure
of
OPMD
Oculo-pharyngeal Muscular Dystrophy (OPMD) is a rare hereditary disease that is more prevalent among Bukharian Jews and among French Canadians.
The common manifestations of the disease is difficulty swallowing and drooping of upper eyelids that may adversely affect the quality of life.
OPMD Project is a volunteer organization, dedicated to helping the affected people by facilitating access to early diagnosis and multidisciplinary care with guidance, counseling and promotion of research projects in collaboration with research teams around the globe to advance the cure of this disease.
What is important to know now?
Contrary to a popular belief about the lack of treatment for inherited genetic diseases, patients with OPMD can be treated for prevention of complications of the disease. Also, very soon we expect a successful development of drugs that could cure the muscles affected by this disease.
If you would like to receive updates on innovations in the disease – please apply to receive our newsletters by sending your name and email address at the bottom of this screen.
What should be done now?
If you suspect swallowing difficulties you should perform a self-test questionnaire for swallowing disorders here.
If one of your parents or one of your siblings has been diagnosed with OPMD – you should check with a multidisciplinary clinic that specializes in this disease.
If you have been diagnosed with OPMD and you feel lost – you should contact us for guidance, advice and help – please click here.
Oculo-pharyngeal Muscular Dystrophy (OPMD) is a rare hereditary disease that is more prevalent among Bukharian Jews and among French Canadians.
The common manifestations of the disease is difficulty swallowing and drooping of upper eyelids that may adversely affect the quality of life.
OPMD Project is a volunteer organization, dedicated to helping the affected people by facilitating access to early diagnosis and multidisciplinary care with guidance, counseling and promotion of research projects in collaboration with research teams around the globe to advance the cure of this disease.
